January 2nd, 2008 John
When Lizzie Gottlieb decided to make a documentary about her brother, she hoped that it would lead to some understanding of his life for her family and herself. Since the release of her film “Today’s Man,” it has opened up a world of people who share his disabilities and have helped open up a world of possibilities.
Gottlieb’s brother, Nicky, was revealed to have Asperger’s Syndrome sometime after she began her project. The disorder, which is on a more functional area of the Autism spectrum, is characterized by varying degrees of social dysfunction and intellectual fixation, as well as possibly extreme sensory issues and accompanying disorders, like depression, anxiety, obsessive compulsive and others.
Children with Asperger’s Syndrome are known for becoming fixated on certain subjects, but despite eventual expertise and often high IQs, usually require a very specialized education plan in order to optimize their strengths and not be overcome by their disabilities. Contrary to popular belief, there is no medication to cure or sate the disorder.
Gottlieb wanted to show the story of what happened to these kids when they were grown-up. Nicky’s parents — former New Yorker editor Robert Gottlieb and actress Maria Tucci— are attempting to figure out that fine line where their son is part of the world, but not thrown to the wolves — allowed to be himself, but not dependent on other people to caretake him while he dawdles through the day on the things that interest him.
Gottlieb is a theater director in New York City and founder and producer of Pure Orange Productions. “Today’s Man” will have its U.S. television premiere on PBS’ “Independent Lens” on January 8.
JM: It seemed obvious to your parents from his birth that Nicky was different.
LG: This is not typical of Asperger’s or Autism, but he had these seizures when he was nine months old that became very extreme. My mother noticed that there was something different about him from when he was born. I don’t think she would have pursued it in any way, but because he had these seizures, he went to many, many doctors. What they noticed with the seizures was that he had something called hypthorhythmia which was an EEG that had high, irregular brain rhythms and nobody knew what that meant. He was put on cortozone, which made his whole body bloat up and stopped the seizures. Because of that, they were on the lookout for things so early. And then he didn’t speak when typical kids begin to speak, so it was clear from pretty early that something was different.
But then he had these incredible abilities. He couldn’t speak and we were going to Italy to visit my mother’s family and all the doctors said to not expose him to another language because he doesn’t speak English yet, it would be very bad for him. We went to Italy and within two weeks, he spoke fluent Italian at three-years old. It was like he would learn English as if it were a foreign language, it was that part of his brain – it was like the way you learn your own language and the way you learn other languages are with different parts of your brain and he couldn’t learn English the way the rest of us do. After he spoke Italian, then he started to speak English, but in an odd way.
JM: As a child, how did you react to this new, needy brother?
LG: I was significantly older and I think that made a big, big difference. I had really wanted a younger sibling and my parents were really extraordinary, they always made it feel like the three of us had a problem to deal with and I never felt excluded, like the attention had shifted away and onto him. I think that was really incredible and really important.
I remember coming home from school and my mother was on the phone with a doctor and she was crying. My grandmother made me leave the room and my mother said, “No, bring her back in,” and she got off the phone and she was crying and she said “Nicky’s going to have a hard time learning.” I said “That’s okay, mom, I’ll teach him.”
I think that feeling came from my parents, from their way of handling it.
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